Surveys

 Surveys: ECMO 

Survey

PROJECT BIONICS

ECMO

Thank you for logging into the Michigan Bionic Survey. You have been selected because you (or your child) were treated with an artificial organ at the University of Michigan. Project Bionics is collecting information regarding the history and current usage of artificial organs. The Michigan Bionic Patient Survey is one part of that overall project.

This survey will provide you with some information about artificial organs and ask you about the artificial organs that were used in your or your relative’s, care. This information will be part of an archive to document the history and usage of artificial organs.

Project Bionics was established in 1998 to collect, document, and present the history of man-made, artificial organs. It is a joint project of the American Society for Artificial Internal Organs, the Smithsonian Institution, and the National Library of Medicine. The activities of Project Bionics are recorded on the website http://echo.gmu.edu/bionics/, along with links to other information about artificial organs.

Project Bionics has a grant from the Sloan Foundation (web site address: www.sloan.org/main.shtml) to document the history of science using the Internet. One important part of this project is to document the experience of patients whose life has been changed by artificial organs.

The Michigan Bionic Patient Survey is supported by the Sloan Foundation grant to determine how effective the Internet can be in recording actual patient experiences. This survey will take about 5 minutes to complete. Thank you very much for helping us out. When the study is completed, you can review the results of the survey by returning to the Project Bionics website.

1. Do you use the Internet?
No
Yes

2. If yes, do you use the Internet to...

look up information?


No
Yes

access interactive services (buying, selling, questionnaires, etc.)?
No
Yes

e-mail?
No
Yes

visit chat rooms?
No
Yes

other (music, telephone, courses, etc.)?
No
Yes

3. Have you used the Internet to learn more about your disease and the use of artificial organs?
No
Yes

4. If so, have you used the Internet to...

search for websites?
No
Yes

visit a specific website?
No
Yes

e-mail?
No
Yes

visit chat rooms?
No
Yes

other?
No
Yes

5. ECMO is a heart-lung machine that can be used for days or weeks. ECMO is used to sustain life during severe heart failure or lung failure. What was the major reason you were on ECMO?
Heart failure
Lung failure
Both

6. How long were you on ECMO?
1-2 days
3-7 days
8-14 days
15-21 days
Over 21 days

7. How long were you in the hospital before ECMO?
1-2 days
3-7 days
8-14 days
15-21 days
Over 21 days

8. How long were you in a hospital or rehab center after ECMO?
1-2 weeks
3-5 weeks
5-12 weeks
Over 12 weeks

9. After you went home, when did you first feel you were "back to normal"?
1-2 weeks
3-6 weeks
6-12 weeks
Over 12 weeks
Never

10. After it was first explained to you (or to your family) how well did you (or your family) understand ECMO?
Quite well
A little
Not at all

11. Now, how well do you understand ECMO?
Quite well
A little
Not at all

12. How did you learn what you know now about ECMO? (Please list in order of importance below.)

a. Explanation by doctors
b. Explanation by nurses and respiratory therapists
c. Explanation by ECMO specialists
d. Reading
e. Internet
f. Talking with other patients

13. How much do you know about the history of ECMO?
A lot
Some
Not at all
Don't care

14. Would you like to know more about the history of ECMO?
Yes
No

15. Would you like to know more about the use and future of ECMO?
Yes
No

16. Research on ECMO is underway. If it were possible, the next step should be: (Please list in order of importance below.)

a. Make the machine smaller
b. Make it easier to use (automatic)
c. Eliminate anticoagulation
d. Make it more available in community hospitals
e. Make a permanent artifical lung
f. Make a permanent artificial heart

17. As a result of this survey would you like to know more about artificial organs?
Yes
No, I know enough already
No, I don't want to know more

18. If yes, I would like to know more about: (Please list in order of importance below.)

a. The history of artificial organs in general
b. The history of my artificial organ
c. The current use of artificial organs
d. Research on the future of artificial organs

19. Please type in any comments on your experience with artificial organs.

Thank you for completing the survey!


Survey created and managed using the Survey Builder, one of the tools from the Roy Rosenzweig Center for History and New Media